Built Specifically for Rare Disease
We know that general health tools often fall short when you have a rare condition. That's why we built something different.
AI That Helps With the Hard Parts
We built specialized companions to support you with the things that take up so much of your time and energy.
Research & Information
The Researcher
Stays current on the latest publications and developments related to your condition, and helps translate complex medical information into language you can actually use.
The Trial Scout
Monitors clinical trial registries and lets you know when studies might be relevant to your situation—saving you hours of searching.
Insurance & Financial Support
The Funding Guide
Helps you find grants, patient assistance programs, and financial resources. Navigating coverage shouldn't be a full-time job.
The Appeals Assistant
Helps you organize documentation and draft appeal letters when insurance claims need extra support.
The Bill Reviewer
Helps you review medical bills for errors and understand charges—because medical billing shouldn't require a decoder ring.
Organization & Coordination
The Document Organizer
Keeps your medical records, test results, and important documents in one place—easy to find when you need them, easy to share when you choose.
The Care Coordinator
Helps you keep track of appointments, medications, and the many moving pieces of managing care across multiple providers.
Wellbeing & Support
The Companion
Sometimes you just need a space to process what you're going through. A supportive tool for reflection, journaling, and working through the emotional weight of chronic illness.
The Resource Finder
Connects you with therapists, support groups, and mental health resources that understand chronic and rare conditions.
The Researcher
Stays current on the latest publications and developments related to your condition, and helps translate complex medical information into language you can actually use.
The Trial Scout
Monitors clinical trial registries and lets you know when studies might be relevant to your situation—saving you hours of searching.
The Funding Guide
Helps you find grants, patient assistance programs, and financial resources. Navigating coverage shouldn't be a full-time job.
The Appeals Assistant
Helps you organize documentation and draft appeal letters when insurance claims need extra support.
The Bill Reviewer
Helps you review medical bills for errors and understand charges—because medical billing shouldn't require a decoder ring.
The Document Organizer
Keeps your medical records, test results, and important documents in one place—easy to find when you need them, easy to share when you choose.
The Care Coordinator
Helps you keep track of appointments, medications, and the many moving pieces of managing care across multiple providers.
The Companion
Sometimes you just need a space to process what you're going through. A supportive tool for reflection, journaling, and working through the emotional weight of chronic illness.
The Resource Finder
Connects you with therapists, support groups, and mental health resources that understand chronic and rare conditions.
Meet Rare Connect.
Find the community you've been looking for.
No algorithm can replace someone who understands. Rare Connect is our space for genuine human connection. We use smart matching to find people who are walking a similar path.
We connect you based on:
The Diagnosis: Same condition, shared stages.
The Struggle: Shared symptoms (e.g., Fatigue, Pain).
The Region: Relevant local resources & insurance.
We See How Much You Carry
Caregiving for someone with a rare condition means managing a thousand details while running on too little sleep. We're here to help lighten the load.
What we help with:
- Financial navigation — Finding grants, reviewing bills, organizing insurance appeals
- Logistics support — Tracking supplies, coordinating schedules, managing medications
- Information management — Keeping records organized, summarizing across providers
- Planning ahead — Resources for legal planning, guardianship, and future care
- Your wellbeing too — Because you can't pour from an empty cup
Tools to Amplify Your Impact
You're working to build community, drive awareness, and create change. We're here to support that work.
What we help with:
- Community building — Registry tools, member matching, knowledge archives
- Staying informed — Research monitoring, conference updates, policy tracking
- Advocacy support — Resources for legislative engagement and public comment
- Growing your organization — Grant writing support, foundation setup guidance
Privacy You Can Trust
Your health information is personal. We built Basion with privacy at the core.
You own your data. Always.
You decide what to share and with whom.
We don't sell your information. Ever.
We don't get paid to promote treatments. We're on your side.
We Know You Have Questions...
It's okay to have questions. Here's the honest truth about what we can (and cannot) do.